EveryLife Foundation for Rare Diseases
Non-Profit & Charitable Organizations · District of Columbia, United States · 51-200 Employees
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Overview
Headquarters
1012 14th St NW Ste 500, Washington, Dis...Phone Number
(202) 697-7273Website
www.everylifefoundation.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
Mar
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Aug
ZI Rank
2
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About EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures. Rare Disease Legislative Advocates (RDLA) is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA believes that every voice matters and that patients are the key to changing public policy.Explore more
EveryLife Foundation for Rare Diseases Org Chart
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Activity Insights
EveryLife Foundation for Rare Diseases is experiencing very low activity levels compared to other companies in the Organizations sector.
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EveryLife Foundation for Rare Diseases is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about EveryLife Foundation for Rare Diseases.
EveryLife Foundation for Rare Diseases financials insights
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2020
Debt
$150K
EveryLife Foundation for Rare Diseases Tech Stack
A closer look at the technologies used by EveryLife Foundation for Rare Diseases
Most Recent Scoops
Event
Project
, according to a mid-level source in advertising & promotion, is in the midst of initiatives related to print advertising. The organization is currently evaluating THIEL and ThreeSixtyEight. EveryLife Foundation for Rare Diseases is focused on event promotion in this area.
Advertising, Print Advertising
Event
Project
, according to a mid-level source in advertising & promotion, is planning to begin initiatives related to native and content advertising within three to six months. The organization is currently evaluating BuySellAds and inboxAds. EveryLife Foundation for Rare Diseases will be increasing funding to support these efforts. The organization is focused on event promotion in this area.
Advertising, Spending/Investment, Content Management, Financial Planning, Funding, Finance
Pain Point
, according to a mid-level source in advertising & promotion, is experiencing challenges related to pricing and packaging optimization.
Pain Point, Advertising, Pricing
Pain Point
, according to a mid-level source in advertising & promotion, is experiencing challenges related to cross-sell and upsell.
Pain Point, Advertising, Sales, Sales Development, Account Management
Pain Point
Pain Point, Advertising, Lead Management, Sales Development
EveryLife Foundation for Rare Diseases News & Media
EveryLife Foundation Scientific Workshop Advances Patient-Centered Approaches to Rare Disease Therapy Development
WASHINGTON, May 14, 2026 /PRNewswire/ -- On Tuesday, the EveryLife Foundation for Rare Diseases (EveryLife Foundation) convened its biennial Scientific Workshop titled, "Making What Matters Count: Advancing Patient-Centered Rare Disease Therapy Development Methodologies, Tools, and...EveryLife Foundation for Rare Diseases Emboldens Advocates and Urges Congress to Prioritize Patients During 15th Annual Rare Disease Week on Capitol Hill
WASHINGTON, March 10, 2026 /PRNewswire/ -- From February 24-26, 2026, the EveryLife Foundation for Rare Diseases (EveryLife Foundation) convened hundreds of patients, caregivers, advocates, researchers, and policymakers from 49 states, the District of Columbia, and Puerto Rico for the...Foundation for Sarcoidosis Research Receives 2025 RareVoice Award for Federal Advocacy During Rare Disease Month
Foundation for Sarcoidosis Research is proud to receive 2025 RareVoice Award for Federal Advocacy and attend Rare Disease Month on Capitol HillThe EveryLife Foundation for Rare Diseases Marks 15th Annual Rare Disease Week on Capitol Hill
Expanded Agenda Creates More Space for Connection, Storytelling, and Advocacy WASHINGTON, Feb. 18, 2026 /PRNewswire/ -- For the 15th consecutive year, the EveryLife Foundation for Rare Diseases (EveryLife Foundation) will welcome advocates from 49 states, the District of Columbia, and...
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The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures. Rare Disease Legislative Advoc... Read More
